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Services & Resources on this site reflect the best practices in the field of Traumatic Brain Injury

Providing wealth of information, creative solutions and leadership on issues related to brain injury since 1985
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Introduction:

    This site is maintained by: Brain Injury Resource Center -- 
  • A non-profit clearinghouse founded and operated by brain injury activists since 1985.
  • If you have landed on this site it is probably because you have learned that head injury is poorly understood, and you need expert guidance to make sense of it. 
     Medical science has only just begun to unravel the mysteries of brain injury. 
  • More questions remain than answers. 
  • Therefore, it stands to reason that the general public wouldn't have a clue as to what they are in for. 
  • Consequently, when it happens to you, or someone you love, you find yourself ill-equipped to deal with the sweeping, life changes it brings. 
     What to do; where do you turn for help?
  • A study by the National Institutes of Health found that 85% of brain injury patients do not receive any treatment or counseling concerning the long term difficulties caused by brain injury. 
  • That same study found that the high cost of rehab services has placed them out of reach of many who would seek help. 
  • A related study showed that simple interventions could provide effective work-arounds for many of the difficulties caused by brain injury.
     You should know that, a Justice Department investigation found that several leading head injury rehab facilities had taken unfair and unlawful advantage of their patients. 
  • This shocking situation, points to the vulnerability of patients and their families during this difficult time. 
  • This regrettable situation underscores the need for consumers to be wise and wary, and that's where we come in.
Purpose:

     The purpose of this site is to share with you lessons we learned long ago. 

  • Our intention is help you avoid much of the grief and loss of  brain injury, and perhaps to inspire you to get involved. 
  • To achieve these goals we offer you the benefit of our considerable knowledge and experience. 
  • Most importantly, we learned that pro-active involvement, knowledge, self-awareness, and self-advocacy are key to quality of life following brain injury. 
       Self-help:
  • We strongly urge you to learn everything you can about brain injury and its life-long effects. 
  • Learn about how it affects you, and how to limit its impact on you. 
  • Set individual and family rehabilitation goals
  • Draft treatments plans and timelines. 
  • Learn about your treatment, and how it is supposed to benefit you. 
  • Check credentials and track-records of  professional service providers. 
  • Work hard to achieve your rehabilitation goals
  • Embrace challenges, instead of giving up when thing things don't come easily. 
  • Take remedial and/or refresher course work in areas of your core competencies. 
  • Ask questions, search out information, and get answers. 
  • Thank those who help you. 
  • Keep your Personal Safety Net in good repair. 
        Healing:
  • Acknowledge your losses, give yourself time to grieve, and then pick up the pieces and move on with your new life. 
  • Moreover, get to know and, learn to love your new self
  • Re-affirm your values and priorities, and trust your instincts. 
  • If you do these things you will achieve your rehabilitation goals, get the help you need, and make informed decisions. 
  • If you adopt and apply these practices your life will change for the better. 
Our Goal:
  • Our goal is to help you maximize your recovery. 
  • To achieve our goal we have placed much of what we've learned on this web site. 
  • Its contents have been drawn from our personal experiences, along with years of research and consultations with our medical and legal advisors
  • We provide information on brain injury and the impairments caused by it, as well as resources and support for dealing with it
  • We promote self-advocacy, and self-care, centered around collaborative partnerships with family, loved ones, and professional service providers. 
  • After you've been checked medically your next stop is here.
  • This is where you will find information on the brain, and how injury changes brain functioning and behavior. 
  • This is where you'll find links to brain injury resources, services, and support. 
  • Additionally, you will find guidelines for choosing and evaluating professional services, as well as links to sites to check out, and/or file complaints about doctors, lawyers, and rehab facilities. 
  • This is where you can assess your own situation and learn effective interventions. 
  • Additionally, you'll find guidelines for creating and maintaining your personal safety net. 
     Information on this site is not designed to replace advice from physicians or other professionals. Disclaimer and Privacy Notice

About this Site:

  • This site was designed for those who want to learn about the effects of brain injury in daily life. 
  • It is based on the premise that physically surviving brain injury is just the first step in a lifelong process of adjustment and accommodation. 
  • Our intent is to give you the benefit of our considerable knowledge, skills and talents. 
  • Our mission is to help you avoid some of the unnecessary losses and devastation caused by the effects of brain injury. 
  • Meet our consultants
Our clientele includes the:
  • America Academy of Neurology -- we assisted with the development of their diagnostic and treatment guidelines 

  • on Concussion in Sports
  • National Institutes of Health TBI Rehab Consensus Conference Statement; Click on the following link to read our statement on the long term effects of brain injury in daily life. NIH-TBI
  • Federal Interagency Conference on TBI 2000. Consultation
  • More
What's in it for you:
  • We offer factual, authoritative information on brain injury, the impairments caused by it and treatment options
  • We provide self-tests, checklists, and strategies to meet the challenges of living with brain injury. 
  • We empower you to know when you need help -- including self help -- and, we enable you to find help and to make informed decisions concerning such help.
  • We bring together those seeking specialized, professional services with those uniquely qualified to provide such services. 
  • We strive to advance understanding of  brain injury and the impairments that result from it. 
  • We encourage collaboration between consumers and professional service providers. Additionally, we provide guidelines and checklists for selecting and monitoring such services.
  • We provide resource directories, of social services, and kindred souls for chat and support.
  • We promote prevention of brain injury. 
How to use this site

     The site is divided into several major topics see the navigation bar on the left side of the screen. On it you will find information to help you achieve your rehabilitation goals.  Topics include:

  • Learn about the brain and how injury affects brain functioning.
  • Resources, including medical and rehabilitation
  • Advocacy including life skills and legal resources.
  • Additionally, you can learn about us and the services we offer
      There are several ways to access the wealth of information and resources on this site. The best way to is to click on the: Tool Kit link or the tool kit graphic below. 

        Use the scroll bar on that page to view links to additional support and resources. These highly recognizable navigational aids can be found on each page of this site.


You can browse the site and print out pages that appeal to you.

     The information and resources on this site are designed to enhance your brain power, and to change your life for the better. 
  • It achieves that goal by providing a framework for reconstructing lives devastated by traumatic brain injury. 
  • This site was designed to serve a broad audience. 
  • To that end it provides information and resources on brain injury for the individual, the family and the professionals that serve them.  
  • It provides information and resources on brain injury from the point of injury to its effects on daily life. 
  • Other information and resources help you recognize and minimize its impact on you and your family. 
  • Still other resources help you select and monitor professional, as well as social services. 
  • Finally, it provides  resources for those seeking expert guidance and/or self-help options. 
Over the years we have assembled considerable resources and information concerning brain injury that we are in the process of uploading, so bear with us.  If you don't see what you're looking for;  e-mail us or give us a call 206-621-8558.
     This site is unmatched in its breadth and depth, and still growing. If you find that you have been helped by the information on this site help us keep this resource alive and well for you. Donations
     We believe that collaboration between consumers and professional service providers will greatly reduce the misery and waste of head injury. Additionally, we believe, that such collaboration will lead to better treatments and perhaps, one day, a cure. To that end we share our talents, skills, knowledge and personal qualities to promote our goal of public empowerment. 

Although we appreciate your comments, the large volume of e-mail sometimes makes it impossible to reply to all messages.  Go to FAQ for answers to the most common e-mail questions

      How you can help:  To reach our goals we need to hear from you. We want to know of your experience of  head injury. More importantly, we want to know of your experience of our site.  Tell us how well it worked for you.  Additionally, tell us, what you would add; as well as, what  you would remove. We value your feedback.
    We strive to be  the most extensive on-line directory of brain injury services and products.  If you know of  a person,  organization, agency, or firm that should be listed, please send it to us in an e-mail.
We are  seeking - individual and corporate sponsors - to help underwrite both general and  targeted programs for Brain Injury Resource Center. Such sponsorships would receive prominent acknowledgment on our site, 206-621-8558 
     We welcome inquiries from volunteers with experience and skills in   research, grants writing, hypertext editing, computers, and basic organizational  management.
What to expect:  This site is fluid, it changes almost daily. While the basic content will remain the same;  you can expect to see regular additions, up dates, and where necessary corrections.  We strive to make your experience with us seamless and cogent. We value your questions and feedback. We can be reached by e-mail or  telephone, 206-621-8558.

While this site was designed primarily for traumatic brain injury it contains information relevant to many types of brain injuries. You'll find information on, and /or, links to resources for various neurological disorders.  Support Groups
The educational and charitable programs of  Head Injury Hotline are made possible by the generous support of individual, and corporate sponsors, and friends. 
There is no charge for the use of  this brain injury information, but if you find this information useful and would like to make a contribution to our project, click here.

This site was last updated on: 
06/01/08
READ Our Disclaimer and Privacy notice before proceeding!